#parkinsonsdisease

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Join us for our Parkinson's support group. This group will provide an opportunity for those disagnosed with Parkinson's to gain information, share ideas, problem solve, and receive support from others who are going through similar situations. 

Wednesday, July 20, 2022 at 1 PM - 1 PM CDT

Join Pan-Pan to learn more about a new Android app that may help people with speech disabilities to communicate better with others, and interact with their Google Assistant.

Tuesday, February 1, 2022 at 7 PM - 8 PM EST

Last year's virtual art show was such a hit, we will do it again this year. Our wellness programs have included hobbies, gardening, singing, and creative writing. We know that creativity in all its expressions improves wellbeing. This program will feature visual arts. We are looking forward to continuing with music and creativity programs in 2022.

Let's make it a special night and take a tour through our virtual art show highlighting local artists who are living with Parkinson's. These artists are gathering to share their work with us! Invite your friends, celebrate and visit with some artists in our PD community.

Check-in for more details and featured artists. This is a Zoom event. Once registered, you will receive a reminder email with the Zoom information.

Friday, December 10, 2021 at 7 PM - 8:30 PM EST

According to statistics from Parkinson's UK, there are around 145,000 people living with Parkinson's Disease in the UK and 5-10% of people who live in care homes have the neurological condition.*

Parkinson's Disease is a neurological condition that causes problems in the brain and gets worse over time. There are three main symptoms of Parkinson's Disease which are a tremor, stiffness and slowness of movement, but other symptoms can be experienced. Medication is important for management of symptoms and can particularly affect person's risk of falling, Parkinson's Disease medication must be given at very specific times and can reduce freezing as well as reduce someone's risk of falls.

Through our webinar we are aiming to provide detailed information for healthcare workers caring for people with Parkinson's Disease including symptoms, management, medication and current research.

The session will be developed and led by Jacqui Chamberlain, Parkinson's Disease Nurse Specialist, St Austell Community Hospital.

Detailed content for this session is being developed and can be tailored to the needs of the organisations who wish to attend. We plan to include the following:

  • Overview of Parkinson's Disease - including motor and non-motor symptoms
  • Management pathway of Parkinson's Disease exacerbation
  • A case study that will discuss a patient with an infection and the impact it will have on Parkinson's Disease
  • Parkinson's Disease Medication
  • Current Research for Parkinson's Disease
Thursday, October 21, 2021 at 9 AM - 11 AM EDT

This session provides information on similarities and differences between Lewy body disease, Parkinson’s disease and Parkinson’s dementia and offers practical tips for family carers.

Dementia Australia's facilitators have specialist dementia knowledge, skills and experience. These sessions are delivered interactively, you will be encouraged to share your experiences alongside other participants giving you an opportunity to develop new support networks.

Suitable for: People living with dementia and their family carers and family members. This program is not suitable for professionals employed in the health or aged care sectors. 

October 17, 2021  —  October 18, 2021
Oct 17, 2021 at 10:30 AM to Oct 18, 2021 at 1 AM EDT

The International Society for Neurodegenerative Diseases is proud to present the ISND 6th Annual Meeting, where we will explore the current forefront of neurodegenerative disease research.

Leading researchers from across the globe will be presenting on a variety of topics, including Alzheimer's disease, Parkinson's disease, motor neuron disease, and more.

Saturday, October 30, 2021 at 9:30 AM - 1:15 PM EDT

The pandemic has disrupted daily activities leaving feelings of isolation and stress. This lecture is to help manage mental wellbeing in PD

Friday, October 22, 2021 at 3 PM - 4 PM EDT

A fun and supportive "virtual" song circle to practice projection, voice control and coordination through the joy of singing! Each session will start with a practice vocal warm-up and then sing your favorite songs with guitar accompaniment.

Note: After registering, you will receive a Zoom (video conference system) invite to your email that will allow you to connect the 1st and 3rd Thursday from 2:00 - 3:30p each month.

Instructors:

Michelle Garratt’s vocal background includes 10 years of choirs, 8 years of professional band performance, and college level vocal training in addition to teaching voice and movement for 10 years. Michelle continues to sing and teach since her own diagnosis of PD because she knows the importance of keeping the joy of music alive while exercising her vocal cords. Michelle had the privilege of learning some wonderful teaching techniques specific to people with PD this year from Judi Spencer at the World Parkinson’s Congress in Kyoto, Japan. Michelle encourages us to make a joyful noise.

Kera Magarill is trained in classical cello, music therapy and improvisational singing and she loves community music-making. She has led “Choir for the Tone Deaf”, a program for community singing for the Denver Public Libraries and she was the creative director for “The Dementors: An Alzheimer’s Association Band”. She currently works for Washington County Disability, Aging and Veteran Services in Older Adult Behavioral Health and is deeply interested in the relationship between music and mood.

Thursday, September 16, 2021 at 5 PM - 6:30 PM EDT

Be Heard Loud and Clear: Maintaining Effective Communication with Parkinson’s

Speech Pathologist Lisa Schmierer will discuss how early intervention from Speech Pathology can help you maintain clear and effective communication for longer periods. This session will cover the range of evidence-based speech pathology interventions available for people with Parkinson’s, including LSVT Loud. Lisa will discuss the importance of clear and effective communication in the workplace, as well as at home and with family and friends. Lisa will also touch on management of other symptoms, such as safe swallowing, language, facial expression and cognitive communication. Lisa Schmierer is the Speech Pathology Clinical Educator for Canberra Health Services.

Thursday, September 2, 2021 at 5:30 PM - 6:30 PM AEST

While Parkinson’s disease is the most common form of parkinsonism, there are other disorders which share similar characteristics called the Parkinson’s Plus disorders or atypical parkinsonism.  These conditions are Dementia with Lewy bodies (DLB), Progressive supranuclear palsy (PSP), Multiple system atrophy (MSA) and Corticobasal syndrome (CBS).  Dr. O'Leary will summarize information about these disorders and discuss potential treatments.

Joanna O'Leary, M.D., focuses on movement disorders and general neurology. She earned her medical degree from Rush University in Chicago, Ill., and completed her internship, residency and fellowship at Oregon Health & Science University in Portland. Dr. O'Leary became a neurologist to work with patients who have challenging diseases. She also enjoys working with a large number of general neurology patients.

Thank you Providence Brain and Spine Institute for partnering on this event.

Tuesday, August 31, 2021 at 3 PM - 4 PM EDT

This programs is part of the Essential Tools For Managing PD series presented by the OHSU Parkinson Center that offers a toolkit for meeting the challenges of mid-stage Parkinson's

Thursday, August 19, 2021 at 4 PM - 6 PM EDT

Over one million people in the US have been diagnosed with Parkinson’s Disease (PD) -the second most common neurodegenerative disease globally. Its chronic nature disturbs motor and non-motor systems, causing a wide range of complex physical and social implications that vary by person and disease progression. Recognizing many unmet needs, The Continuum continues to develop comprehensive programs for people with PD, their care partners, family and friends- as well as educating our community. It takes a village.

 

Guest Speaker: Diane Ross, CEO and TC team will be sharing programs specific to helping those affected by PD and a special guest appearance by the PD Rappers!

Monday, August 16, 2021 at 4 PM - 5 PM EDT

In this course, we apply our Neurophysiology knowledge to the populations who suffer from spinal cord injury, stroke, Parkinson’s disease and multiple sclerosis. We look at what happens to the nervous system when things go wrong and how this affects movement. You leave able to design exercise programs that help these special populations enhance their movement potential.

Learning objectives

  • Gain a basic understanding of neurophysiology with respect to neurological impairments, such as spinal cord injury, stroke, Parkinson’s disease and multiple sclerosis
  • Learn verbal and non-verbal cueing techniques to promote change in the movement patterns for individuals with neurological impairments
  • Find out how to design exercise programs for individuals with neurological impairments
Sunday, July 11, 2021 at 8 AM - 2 PM EDT

Learn from the experts about all aspects of Parkinson’s disease — from diagnosis to the latest treatments, lifestyle issues, and speech and exercise therapies. Our team from the Parkinson’s and Other Movement Disorders Center at UC San Diego Health will share the latest insights on ways to improve the quality of life for people with PD.

 

Day 5 will feature Dr. Brenton Wright, MD Assistant Professor of Neurosciences, Director, Movement Disorder Fellowship Program Parkinson and Other Movement Disorders Center at UC San Diego & Dr. Caitlin Mulligan, MD Assistant Clinical Professor Parkinson & Other Movement Disorders Center at UC San San Diego.

Saturday, July 10, 2021 at 1:30 PM - 2:35 PM EDT

The 4th Annual Parkinson's Expo has gone completely VIRTUAL to allow YOU, the Parkinson's community, to join in from the comfort of your home.

The 2021 Parkinson's Expo is an event designed to educate, engage, and empower the Parkinson's community. The Expo will comprehensively address the needs of people with PD and their Care Partners by offering high-quality, important information presented by nationally renowned experts in the field. The Expo will also feature a virtual exhibit hall, live presentations, and a myriad of resources to help people with Parkinson's and their caregivers live well with the disease today. The Expo begins at 9:00am Eastern Daylight Time on June 12th!

Thanks to the generous support of our donors, sponsors and community partners all Neuro Challenge programs and services, including the Expo, are provided at no charge.

Recorded Presentations will be available on our website, NeuroChallenge.org at a later date. The presentation by our Exclusive Presenting Sponsor, Sunovion will not be recorded, so tune in live for that information.

Register by June 1st for a Swag Bag filled with information and goodies.

Saturday, June 12, 2021 at 9 AM - 2 PM EDT

Join us on Saturday, May 1, 2021 to learn about techniques that have been shown to improve emotional health and well-being for people with Parkinson's.

The virtual Mental Health and Parkinson's Disease Conference explores the mental health impact of Parkinson's and provides tools to help improve the emotional well-being of people with the disease and their care partners. You will leave the conference with evidence-based techniques that you can incorporate into your daily life to live better with Parkinson's.

This free online conference is from 8:30am-12:30pm PST. Registration is required to attend.

The conference presenters are:

Overview of Mental Health and Parkinson’s with Suzanna Eller, MA, LMHC, NBCC.

Discovering Mindfulness & Self-Compassion with Bartja Wachtel, MSW, LICSW, Mindful Self-Compassion Trained Teacher

Yoga for People with Parkinson's with Peter Lynch, lead instructor and owner of Yoga for PD

More information about the sessions can be found online at briangrant.org/events.

Agenda, additional materials, and links to the webcast will be emailed to attendees by 5pm PST on April 30, 2021.

Presented by Abbvie, Amneal and Moda Health

Saturday, May 1, 2021 at 11:30 AM - 3:30 PM EDT

The Cedars-Sinai Movement Disorders Program is gathering the community during Parkinson's Awareness Month to share the latest in scientific understanding of the progressive brain disorder. With promising new research emerging, Department of Neurology experts will highlight current clinical trials and equip patients and their caretakers with the resources to make the most informed care decisions. Our medical team will tackle both established and breakthrough Parkinson's treatments, including surgery and the full gamut of multidisciplinary care from physical and speech therapy to behavioral therapy. Participants can find out more about the treatments at our Parkinson's Disease Center.

 

Date: 4/24/2021

Time: 9am to 12:45pm

 

Agenda

Parkinson’s Disease: What’s New? | Michele Tagliati, MD

Established and Novel Medical Treatments for Parkinson’s Disease | Echo Tan, MD

Surgical Solutions for Advanced Parkinson’s Disease | Adam Mamelak, MD

Current Research Trials for Parkinson’s Disease | Elliot Hogg, MD

Parkinson’s Disease, a Multidisciplinary Approach: Physical Therapy, Occupational Therapy, Speech Language Pathology, Behavioral Therapy and Clinical Social Work | Members of our Multidisciplinary Team

This event is a Zoom Webinar.

Please connect through ceda.rs/367jCLo

original URL : https://cedars-sinai.zoom.us/j/99324184112?pwd=bzE0WVRCMGk5SjF0MVh3aEUyai9WZz09

For any questions, please contact Bridget Frommel at [email protected] or 310-248-6704

Saturday, April 24, 2021 at 12 PM - 4 PM EDT
Apr
23

Hey everyone, I hope you had a good start for this week! Our event "Mind and Body", which highlights the impact of Dementia and Parkinson's Disease on mental health will be held on 23 April 2021 (Fri), 6pm via Zoom!

Simply click the Zoom link below to participate:

https://us02web.zoom.us/j/82686457790

Join us and stand a chance to win KFC vouchers worth $10 each when you complete our online feedback form!

For more information, please refer to the flyer below or contact us at [email protected] / 6509 0271.

Friday, April 23, 2021 at 6 AM - 8 AM EDT

Dance classes for individuals with Parkinson’s Disease provide an enjoyable, creative and safe environment for participants, their care partners, family and friends. Based on the Dance for PD® program developed by the Mark Morris Dance Group and the Brooklyn Parkinson Group, this class is appropriate for anyone with PD, no matter how advanced. No dance experience is required. In chairs, at a barre or standing, participants will explore elements of modern dance, ballet, folk and social dancing in a non-pressured, stimulating, and creative environment.

Sunday, March 14, 2021 at 1 PM - 2:30 PM EDT

Parkinson Canada hosts a monthly support group for those living with Parkinson and support persons on the second Wednesday of each month at the Arnprior Public Library from 1:30pm to 3:30pm. Each month features a different guest speaker providing a variety of knowledge to help those living with and their support group.

Wednesday, December 12, 2018 at 1:30 PM - 3:30 PM EST
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