Join Pan-Pan to learn more about a new Android app that may help people with speech disabilities to communicate better with others, and interact with their Google Assistant.

The United Power Ride for CP is a fall event presented by Dreamer' Walk Canada! This consists of a roughly 100 km motorcycle  ride andscavenger hunt from Ottawa, ON to Lancaster, ON.

The 2021 International CP Genomics Consortium (ICPGC) meeting will bring together researchers and trainees from the CP genomics community around the world, together with stakeholders and other interested parties. This meeting follows on from our very successful inaugural meeting in Adelaide, Australia in 2017, and subsequent meetings in Zhengzhou, China (2018) and Anaheim, USA (2019). The 2021 meeting will be entirely virtual, registration is free, and all are welcome.

The ICPGC meeting will be centred around brief update presentations from members around the world, and meetings of its Phenotype, Bioinformatics, CP Commons, and Communication working groups. We will also be formally launching the CP Commons, the ICPGC’s data sharing portal.

The meeting will also feature a keynote lecture from David Rowitch, Professor of Paediatrics and Head of Department, University of Cambridge (UK). Professor Rowitch will give his perspective as both neonatologist and neuroscientist to review insights into human neurobiology that pertain to CP genetics and transcriptomics, clinical application of genome sequencing in the UK’s National Health Service, and insights into genetic conditions that are misdiagnosed as CP early in life.

The 2021 ICPGC meeting is being organized by CP-NET and CanChild, with the support of the McLaughlin Centre.

The series is hosted by United Cerebral Palsy in collaboration with the UCP National Research Committee, Gillette Children's Specialty Healthcare (UCP of Minnesota) and UCP of Central Arizona.

The 90-minute sessions are aimed at professionals who work with people with cerebral palsy, but they are open to the general public.

The presenters are all associated with United Cerebral Palsy affiliates.

The RCH Allied Health and Nursing Education Outreach Program is excited to invite you to attend this videoconference on 'Interdisciplinary approach to managing hypertonia in Cerebral Palsy'.

Presenters: Tanya Harle (Physiotherapist) and Dr Neil Wimalasundera (Consultant in Paediatric Rehabilitation). Victorian Paediatric Rehabilitation Service (RCH).

We encourage any allied health, nursing and medical clinicians who are interested to attend.*Please note that this videoconference is not designed for students. If you are a student and wish to register, please contact us directly in the first instance to confirm that you will be watching with an appropriate clinician supervisor*

The videoconference link and presentation slides will be emailed to you a few days before the videoconference presentation. If, for some reason, you have not received the Zoom link by the day before the event, please contact us via our email address at [email protected] and we will send it out.

For specific enquiries please email [email protected]

Join Shriners Hospitals for Children for a Virtual Grand Rounds by Haluk Altiok, MD Understanding and Management of Cerebral Palsy

Join Cerebral Palsy Alliance online on Monday 3rd May for the launch of CPActive: a new campaign community to champion people with cerebral palsy (CP) and similar conditions.

At the launch you’ll hear more about what’s happening with the NDIS and how CPActive aims to change the systems, and raise the voices of all Australians with CP and similar disabilities.

Most importantly, we also want to hear from you about how we can empower each other to create change.

Join us, and together we can make sure every voice is heard.

This 1-hour webinar will provide information about a range of different projects and activities that are occurring in Australia that provide important context for the CP Achieve program of work. Topics covered will be:

• National Disability Strategy
• National Disability Research Partnership
• National Disability Data Asset
• National Disability Research Agenda
• The CP Info Project
• The ANZ CP Strategy

Followed up by a 20-minute Q&A session.

 

Bruce Bonyhady is a disability reformer, economist, one of the key architects of the National Disability Insurance Scheme (NDIS) and was the inaugural Chair of the National Disability Insurance Agency (NDIA) from 2013 to 2016. Professor Bonyhady is the father of three adult sons, two of whom have disabilities and in the 2010 Queen's Birthday Honours, he was appointed as a Member of the Order of Australia for services to people with disabilities, their families and carers, and to the community as a contributor to a range of charitable organisations.

Christine Imms is the Apex Australia Foundation Chair in Neurodevelopment and Disability at the University of Melbourne (a collaborative initiative of Apex Australia, The RCH Foundation and the University of Melbourne) and a Fellow of the Occupational Therapy Australia Research Academy. Her research focuses on those with childhood-onset disability and their families, with the goals of learning how to optimise their participation outcomes; development and evaluation of interventions; and development and validation of measures. Her CRE CP Achieve Goals are to progress the participation research agenda and to build a program of research and teams of researchers that can be sustained beyond the life of the CRE.

FAQ:

What is CP-Achieve?

The Centre of Research Excellence: Australian Centre for Health, Independence, Economic Participation and Value Enhanced Care for adolescents and young adults with cerebral palsy (CP-Achieve). CP-ACHIEVE is a five year, NHMRC funded Centre of Research Excellence project that supports collaborative research and development in cerebral palsy research. The team consists of a multidisciplinary group of adolescents and young adults with cerebral palsy, families, clinicians, researchers and students that are all working together to fulfil CP-Achieve’s aims. CP-Achieve commenced in February 2020 and will finish in 2025.

What does CP-Achieve do?

CP-ACHIEVE fosters health care access and promotes healthy lifestyle interventions to improve community participation. Two overarching aims guide the research program: to improve physical and mental health, and to build supportive family, community and health service environments. The outcomes of CP-Achieve are to establish rigorous population-based data about the scope of health and participation problems, best practices and guidelines for health and disability service providers, means to empower adolescents and young adults with cerebral palsy to use health and community services, and models of cost-effectiveness to inform policy and practice, and drive value-enhanced care.

Jessica Ryan-Ndegwa has become a successful designer and curator, despite suffering from Cerebral Palsy – designing both regular household products and beautiful products for disabled people through her Design for Disability project. Seeing her disability as a positive rather than a negative, she’s also become an energetic advocate for inclusivity in the design world. In this talk, she discusses how we should focus on the human aspect of the design process as well as the product itself. Expect to learn:

• The ins and outs of designing for people with disabilities
• How empathy and inclusivity can lead to better design
• How all brands can have a more human-centred design process

About Jessica Ryan-Ndegwa

Designer and disability advocate Jessica Ryan-Ndegwa was born and raised in London with Cerebral Palsy, which affects her balance and short-term memory. After graduating from Kingston University with a BA in Product and Furniture Design, her mission has always been to champion a more inclusive society. Her work includes writing, designing, and curating with companies such as the Tate Exchange, the Institute of Contemporary Arts and The Design Museum, while becoming an energetic campaigner for disability inclusion. She has always embraced her differences positively, and refused to be seen as a victim for her disability.

I got 99 problems... palsy is just one | Maysoon Zayid

UNWLA branch 137 will host one of the most creative designers in Ukraine, her shows are always bright and enchanting, collections are keenly fashionable, necessarily Ukrainian and absolutely unpredictable. Oksana Karavanska is one of the top three Ukrainian designers and is a well-known for her charity work. Visitors will have an opportunity to purchase and order couture clothes by designer. Additionally, there will be opportunities to win prizes.

Proceeds will benefit one of the projects of Ukrainian National Women’s League of America - The Dzerelo Children’s Rehabilitation Center which provides a comprehensive program of education and rehabilitation services to children and youth with cerebral palsy, Down syndrome, autism spectrum disorder, attention deficit hyperactivity disorder, and other developmental disabilities. UNWLA’s Dzherelo fund supports the training of personnel who work with children with special needs.

New York City
Fred Astaire Dance Studio Downtown New York
291 Broadway, Suite 900
New York, NY 10007
October 25th, 7 – 10 pm

Montclair, NJ
18 Label Studio
22 Frink Street
Montclair, NJ 07042
October 27th, 4 – 7 pm

Eventrbrite: https://www.eventbrite.com/e/vyshyvanka-couture-oksana-karavanska-fundraiser-tickets-71750314121

$45 – Standing Room Only. Ticket includes refreshments and hors d'ouevres.
$55 – Seated. Ticket includes refreshments, hors d'ouevres, and a seat.

How 'Christopher Robin' Erases Part of Winnie the Pooh History

The #movie Christopher Robin had a chance to include the real life story of the daughter of Christopher Robin, a philanthropist who had cerebral palsy - and they didn't include her story in the movie.

 

The 2018 CPISRA World Games represents a unique opportunity to grow the participation of athletes with cerebral palsy, and related neurological conditions, across a number of Sports, Classifications, Events and Disciplines. This is particularly important for those sports and events which are not currently part of the Paralympic Games programme, but where there is an aspiration to compete at World level and develop these for the future. As an IOSD and membership, we have a collective responsibility to develop the World Games as a catalyst for enhancing CP opportunity and participation, and provide opportunity for all.

Young driver won’t allow cerebral palsy to stop his big rig dreams

A young truck driver refuses to allow cerebral palsy to stand between him and his big (rig) dreams.

 

The Cerebral Palsy Association of BC is proud to announce our new seniors’ mentoring program – You and Me: Aging Without Limits.

Aging with a disability presents many challenges – medical, financial, social and emotional. Our program will pair mentors with mentees to develop and work toward setting and achieving personal goals aimed at navigating the changes and challenges that are part of aging with a disability. The program relies on the lived experience of our more senior members to provide connection, guidance and support for those approaching their senior years.

Monthly meetings will provide social and recreational opportunities as well as presentations on related topics.

For people living with cerebral palsy and other disabilities, issues of aging can be present at any chronological age. Anyone confronting issues of aging, or who self-identifies as a senior is welcome to join us! The program is not limited to a specific age.

Whether you see yourself as a mentor, or as someone seeking the guidance of a mentor, we invite you to join us in this new adventure. Our program launches on Friday, July 20th at the Roundhouse Community Centre, Room B (181 Roundhouse Mews) from 12:30 – 3 pm. Refreshments will be provided!

For more information, contact Denzil at the CPABC office at 604-408-9484 or email [email protected].

Manitoba woman fights to live independently, says move to group home 'a basic human rights violation'

In Manitoba, woman who lives with cerebral palsy says she is being forced to move into a provincial group #home after more than a decade of living on her own.

 

Locked out of life': Disability advocate goes behind bars to raise awareness of funding gaps

Tyson Sylvester, who is blind and lives with cerebral palsy, put himself behind bars because, he says, he is locked out of life.

 

'Keep going': Montreal student with special needs graduates after 17 years

A Montreal man with cerebral palsy is celebrating his graduation after 17 years at the same school, where his friends and teachers say he has been an inspiration.

 

Stop distracting service dogs, says owner, trainer

Service dog owners want the public to let dogs focus on their jobs - by ignoring the dogs to let them do their jobs.

 

Teacher refuses to leave student with cerebral palsy behind on class hike – her solution is amazing

Teacher refuses to leave student with cerebral palsy behind on class hike - so she buys a device to carry the student on her back.