#AmyotrophicLateralSclerosis

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Join Pan-Pan to learn more about a new Android app that may help people with speech disabilities to communicate better with others, and interact with their Google Assistant.


Tuesday, February 1, 2022 at 7 PM - 8 PM EST

This may be a turning point in treating neurodegenerative diseases

Success in trials for huntington’s and spinal muscular atrophy raises hopes that diseases such as alzheimer’s and ALS could be tackled using a new class of drugs

 


Posted 8 years ago

The Tributes to Stephen Hawking Show What’s Wrong With How We Talk About Disability

Since Dr. Stephen Hawking's death, the media's message has been that he accomplished so much in spite of his disability rather than because of his disability.

 


Posted 8 years ago

Stephen Hawking dead at 76

A brilliant mind and an icon in disability advocacy.

"Stephen Hawking, whose brilliant mind ranged across time and space though his body was paralyzed by disease, died peacefully at home early Wednesday in Cambridge, England. He was 76 years old."

 


Posted 8 years ago

The rights of disabled Americans are under attack

The Americans with Disabilities Act (ADA) has been law for 28 years now -- and I can honestly say that rights for Americans with disabilities, including accessibility to public spaces, are now facing more uncertainty and outright hostility than at any time in recent memory.

 


Posted 8 years ago

Voiceitt App

Voiceitt is the only assistive communications tool that allows people with speech disabilities associated with childhood conditions like cerebral palsy and autism or degenerative diseases like ALS or Parkinson’s to communicate using their own voices. 

http://www.talkitt.com/


Posted 9 years ago

Why My Disability Doesn't Stop Me From Living

Woman with ALS Talks About Her Perspective on Disability

 


Posted 9 years ago

Real Time Observation of Neurodegenerative Diseases

Photo: Specious Reasons / flickr / cc by-nc 

  • C. elegans stands for 'Caenorhabditis Elegans'
    • A roundworm, commonly used in research
  • Researchers developed device to isolate C. elegans
    • Housing 32 individual compartments, the device is 2cm by 2cm
  • Significance of this research tool is it enables:
    • Observing protein cluster formation, associated with:
      • Amyotrophic Lateral Sclerosis
        • A progressive and fatal neurodegenerative disease
      • Alzheimer's disease
        • A progressive, degenerative disorder
      • Parkinson's disease
        • A chronic and progressive movement disorder
      • Other neurodegenerative diseases
    • Testing the effects of certain drugs
    • Roundworm, immobilization using a temp-sensitive solution
  • Published in the journal Molecular Neurodegeneration

Posted 10 years ago
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