This 1-hour webinar will provide information about a range of different projects and activities that are occurring in Australia that provide important context for the CP Achieve program of work. Topics covered will be:
Followed up by a 20-minute Q&A session.
Bruce Bonyhady is a disability reformer, economist, one of the key architects of the National Disability Insurance Scheme (NDIS) and was the inaugural Chair of the National Disability Insurance Agency (NDIA) from 2013 to 2016. Professor Bonyhady is the father of three adult sons, two of whom have disabilities and in the 2010 Queen's Birthday Honours, he was appointed as a Member of the Order of Australia for services to people with disabilities, their families and carers, and to the community as a contributor to a range of charitable organisations.
Christine Imms is the Apex Australia Foundation Chair in Neurodevelopment and Disability at the University of Melbourne (a collaborative initiative of Apex Australia, The RCH Foundation and the University of Melbourne) and a Fellow of the Occupational Therapy Australia Research Academy. Her research focuses on those with childhood-onset disability and their families, with the goals of learning how to optimise their participation outcomes; development and evaluation of interventions; and development and validation of measures. Her CRE CP Achieve Goals are to progress the participation research agenda and to build a program of research and teams of researchers that can be sustained beyond the life of the CRE.
FAQ:
What is CP-Achieve?
The Centre of Research Excellence: Australian Centre for Health, Independence, Economic Participation and Value Enhanced Care for adolescents and young adults with cerebral palsy (CP-Achieve). CP-ACHIEVE is a five year, NHMRC funded Centre of Research Excellence project that supports collaborative research and development in cerebral palsy research. The team consists of a multidisciplinary group of adolescents and young adults with cerebral palsy, families, clinicians, researchers and students that are all working together to fulfil CP-Achieve’s aims. CP-Achieve commenced in February 2020 and will finish in 2025.
What does CP-Achieve do?
CP-ACHIEVE fosters health care access and promotes healthy lifestyle interventions to improve community participation. Two overarching aims guide the research program: to improve physical and mental health, and to build supportive family, community and health service environments. The outcomes of CP-Achieve are to establish rigorous population-based data about the scope of health and participation problems, best practices and guidelines for health and disability service providers, means to empower adolescents and young adults with cerebral palsy to use health and community services, and models of cost-effectiveness to inform policy and practice, and drive value-enhanced care.