#HuntingtonDisease
This may be a turning point in treating neurodegenerative diseases
Success in trials for huntington’s and spinal muscular atrophy raises hopes that diseases such as alzheimer’s and ALS could be tackled using a new class of drugs
Please join the local Huntington’s community for dessert, coffee and drinks, followed by two special presentations that will be of great interest to individuals and families affected by Huntington disease:
- Huntington Disease Research – Major News and Local Opportunities
- Citizen Advocacy Ottawa
Please RSVP to Sharon Haig at 613-739-4446, or email [email protected]
Huntington’s Disease Drug Works (HDDW)
Huntington's Disease Drug Works (HDDW) founded by LaVonne and Nathan Goodman in 2004 has evolved over the years. At present the focus is providing information on present treatment options for Huntington's disease.
Huntington’s Disease News
Huntington's Disease News is strictly a news and information website about the disease.
https://huntingtonsdiseasenews.com/
HDBuzz
HDBuzz is the first internet portal for the rapid dissemination of high-quality Huntington’s disease (HD) research news to the global community, written in plain language, by HD clinicians and scientists. It covers laboratory and clinical research, with the aim of helping HD people to understand the latest HD science, on their own terms.
CARING FOR LATE STAGE HD
Late stage HD requires round-the-clock nursing care, which can be difficult to find because of the nature of Huntington disease. Get practical tips about how to care for individuals with late stage HD.
FAMILY PLANNING IN HD
Having children when a couple is at risk of HD can be a complicated decision. Learn the options from HSG member and neurologist Martha Nance.
TREATING WEIGHT LOSS IN HD
Symptoms of HD are treatable. Weight loss can be a challenge to combat. HSG member and neurologist Martha Nance gives tips on how to maintain and gain weight.
TREATING UNAWARENESS IN HD
Symptoms of HD are treatable. Unawareness can be a frustrating symptom for family members, but HSG member and neurologist Martha Nance and HSG member and psychiatrist Mary Edmondson provide strategies for coping with it.
TREATING IRRITABILITY IN HD
Symptoms of HD are treatable. One of the most challenging symptoms of HD is irritability or rage.
TREATING CHOREA IN HD
Symptoms of HD are treatable. Learn the basics of how to treat chorea from HSG members and neurologists Martha Nance and Daniel Claassen.
HD DISEASE PROGRESSION
Learn the course, progression and stages of Huntington disease from HSG member and neurologist Martha Nance.
NEW DIAGNOSIS OF HD
Get advice from HD experts on how they help families who have a new diagnosis of Huntington disease.
GENETIC TESTING FOR HD
Testing for Huntington disease is not just a simple blood test. HSG Member and neurologist Martha Nance explains the ideal ways to provide genetic testing and support for families at risk for HD.
INTRODUCTION TO JUVENILE HD
Learn what makes Juvenile Huntington disease different from adult onset from HSG member and neurologist Martha Nance.
INTRODUCTION TO HD
Learn the basics of Huntington disease from HSG member and neurologist Victor Sung, who explains that HD is a treatable disease.
Care Education Videos
HD is a treatable disease, and HSG, its members, partners, sponsors, and families are seeking more treatments that make a difference and improve the quality of life for individuals and families living with HD.
http://huntingtonstudygroup.org/care-education-videos/
Huntington's Disease Lighthouse Families
The HD Lighthouse web site is a voluntary effort serving the Huntington's Disease Community.
Saskatchewan principal to walk across province for Huntington's Disease awareness
Greg Shwaga’s walk to raise awareness and support for #research into Huntington’s Disease will take him across Saskatchewan from the Alberta border near Macklin all the way to the Manitoba border near the Lake of the Prairies.
