ndividuals, families, professionals and educators interested in the medical, research, educational, psychosocial and therapeutic aspects in relation to CHARGE Syndrome or multisensory impairment. Speakers will be presenting a wide range of evidence-based topics that reflect best practice in the field and will provide practical take-home strategies for families/carers.

The conference is an opportunity for families to meet and network with others facing the same challenges, learn from professionals, and to leave armed with useful strategies.

CHARGE Syndrome Association of Australasia Ltd

The CHARGE Syndrome Association of Australasia Ltd is committed to improving the health, education and wellbeing of children and adults with CHARGE Syndrome and supporting their families in Australia and New Zealand.

http://www.chargesyndrome.org.au/

We held our first conference in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.

Since then, the biennial conference has grown in its significance and impact, attracting over 1,200 individuals at its most recent 2015 conference in Schaumburg, Illinois. Roughly half of the attendees were first-timers, new parents and professionals who were just coming to grips with how to deal with the myriad of medical and developmental issues facing their child.

Meet the Saint John teen whose rare syndrome can't slow her down

Meet a Saint John's (New Brunswick) teenager with a rare genetic disorder. On July 26, the family will travel to Orlando, F.L., to take part in the 13th International CHARGE Syndrome Conference.