We held our first conference in 1993 in St. Louis, Missouri. It was attended by over 250 people, including about 50 children with CHARGE.

Since then, the biennial conference has grown in its significance and impact, attracting over 1,200 individuals at its most recent 2015 conference in Schaumburg, Illinois. Roughly half of the attendees were first-timers, new parents and professionals who were just coming to grips with how to deal with the myriad of medical and developmental issues facing their child.