#fragile-x-syndrome

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Those who are unfamiliar with Elizabeth Berry-Kravis, MD and PhD, she is the Co-Director of the Molecular Diagnostics Section of the Genetic Laboratory at Rush University. ... Berry-Kravis has a history of studying Fragile X and established the comprehensive Fragile X Clinic and Research Program at Rush University in 1992.

More recently, a $4 million cooperative agreement to “Characterize the Natural History of Fragile X Syndrome to Inform the Development of Intervention and Outcome Measures” was awarded to Dr. Elizabeth Berry-Kravis of Rush University Medical Center by the Centers for Disease Control and Prevention (CDC).


Sunday, January 16, 2022 at 4 PM EST

This webinar with Zoom videoconferencing will be held from 10-11:00AM CST.

Speakers:

Dr. Daryl Scott, Department of Molecular and Human Genetics , Baylor College of Medicine

Laura Buckner, M.Ed., L.P.C. and Mom, UT Texas Center for Disability Studies

This Saturday Series is a collaboration with Baylor College of Medicine, Texas Children's Hospital, the UT Texas Center for Disability Studies with funding by the Department of State Health Services.


Saturday, April 24, 2021 at 11 AM - 12 PM EDT

Register for the next Spectrum webinar featuring Mark Bear, who will review the latest research on treatments for fragile X syndrome.

 

Mark Bear
Picower Professor of Neuroscience @Massachusetts Institute of Technology
Mark Bear is Picower Professor of Neuroscience at The Picower Institute for Learning and Memory at the Massachusetts Institute of Technology.

Wednesday, August 21, 2019 at 12 PM EDT

Fragile X Support Group WA Inc

The Fragile X Support Group is here to help parents, carers or relatives that have had family members or friends diagnosed with Fragile X Syndrome.

http://www.fragilex-wa.websyte.com.au/site.cfm?/fragilex-wa/


Posted 9 years ago