AEE Pompe - Asociación Española de Enfermos de Pompe in Alcabón, Spain, is a member of Federación ASEM. Federación ASEM is the Spanish federation of associations of people with neuromuscular diseases.
For World Pompe Day, AEE Pompe hosts a webinar about the new treatment Pombiliti and Opfolda. A hospital doctor explains how it works. Patients and families can ask questions.
AEE Pompe holds its third congress in Valencia. Doctors, researchers and families share the latest news on Pompe disease. It is a chance to learn and meet others.
AEE Pompe holds its fourth congress in San Sebastián. Doctors, researchers and families share the latest news on Pompe disease. It is a chance to learn and meet others.
AEE Pompe - Asociación Española de Enfermos de Pompe in Alcabón, Spain, is a member of Federación ASEM. Federación ASEM is the Spanish federation of associations of people with neuromuscular diseases.