AEE Pompe - Asociación Española de Enfermos de Pompe
@asemAEEPompe

AEE Pompe - Asociación Española de Enfermos de Pompe in Alcabón, Spain, is a member of Federación ASEM. Federación ASEM is the Spanish federation of associations of people with neuromuscular diseases.

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For World Pompe Day, AEE Pompe hosts a webinar about the new treatment Pombiliti and Opfolda. A hospital doctor explains how it works. Patients and families can ask questions.


Tuesday, April 15, 2025 at 8 AM - 5 PM BST

AEE Pompe holds its third congress in Valencia. Doctors, researchers and families share the latest news on Pompe disease. It is a chance to learn and meet others.


October 27, 2023  —  October 28, 2023
Oct 27, 2023 at 9 AM to Oct 28, 2023 at 5 PM BST

AEE Pompe holds its fourth congress in San Sebastián. Doctors, researchers and families share the latest news on Pompe disease. It is a chance to learn and meet others.


Thursday, October 3, 2024 at 8 AM - 5 PM BST
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Plaza de España, 1 (Ayuntamiento de Alcabón), 45523 Alcabón, Spain
+34636992973

AEE Pompe - Asociación Española de Enfermos de Pompe in Alcabón, Spain, is a member of Federación ASEM. Federación ASEM is the Spanish federation of associations of people with neuromuscular diseases.


Federación ASEM - Federación Española de Enfermedades Neuromusculares