Federación ASEM is the Spanish federation of associations of people with neuromuscular diseases, such as muscular dystrophy, spinal muscular atrophy, myasthenia and Charcot-Marie-Tooth disease. It brings together regional associations and associations for one disease. This is the federation office in Barcelona.
The Aragon Palliative Care Society marks World Palliative Care Day in Zaragoza with the motto "It is about living, not only dying". ASEM Aragón takes part. Talks explain how palliative care improves quality of life.
AEE Pompe hosts a live video talk on exercise and rehabilitation in Pompe disease. A rehabilitation doctor explains safe exercise and therapy. Time for questions follows.
ASENECAN starts a project to teach technology and smart home tools to people with neuromuscular diseases. Participants learn devices that make daily life easier. It promotes independence.
The Ibero-American LGMD day is an online meeting about limb-girdle muscular dystrophy. Patient groups and experts from many countries share news. Families can follow and ask questions.
ASENSE-A takes part in the Guadalquivir Night Race in Seville. Members raise awareness of neuromuscular diseases among runners. It is a fun evening of sport.
CMT Spain hosts the Sumando Pasos meeting for people with Charcot-Marie-Tooth disease and their families. Members learn from experts and support each other. It is a warm and useful gathering.
FundAME holds its yearly family days for people with spinal muscular atrophy. Families attend talks and workshops and share experiences. It is a time to learn and connect in person.
Federación ASEM is the Spanish federation of associations of people with neuromuscular diseases, such as muscular dystrophy, spinal muscular atrophy, myasthenia and Charcot-Marie-Tooth disease. It brings together regional associations and associations for one disease. This is the federation office in Barcelona.