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Living with ehlers danlos syndrome/hypermobile spectrum disorder
Apr
6
Living with ehlers danlos syndrome/hypermobile spectrum disorder
Tuesday, April 6, 2021 at 4 PM - 6 PM PDT

all proceeds will go to my charity community medical solutions that directly supports the medical needs of people with EDS

-questioning stereotypes of disability

-living with rare disease

-managing multiple doctors/spsecialists

-work access and accomodations

-emotional and practical aspects of going to the hospital. difference between ER & urgent care

-finding the right mobility aids

-chronic pain and mental health

-managing the financial aspect of chronic illness

-support group time and suggestions for next session

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